Cefaly - at last

I have resisted buying the Cefaly machine for a long time as I have never been convinced by the lack of proper research into it's effectiveness.  There have been tests but they have not been clinical enough to be approved in this country (although it is available on insurance in America).  What we need are some proper double blind tests to prove beyond all doubt that it works.  The other reason that I have been resisting is that in America you can get your money back if it doesn't work whereas in the UK they don't offer the same policy and £250 is just a little bit too much to pay just to try something out.

But, my migraines have been getting slowly worse (I am currently getting 27 days of headaches per month with 18 being migs) so I decided that it was worth the expense to try and manage my migs (actually my mum helped with the costs so yay mum!)

It arrived yesterday and I eagerly unwrapped the boxes to see what it;s all about.

It comes in a cool case to keep it safe.  Quite sturdy and looks good.  The machine itself is disappointingly flimsy.  The battery covers are loose and seem to be gripping on by the skin of their teeth.  But, looks aren't everything, after all, I would gladly slap a piece of rusty metal round my head if only it would keep the pain at bay.

It is easy to put on. You put the plaster on your forehead and rest the machine on the protruding metal contact.
It doesn't click into place but just rests there.  I like to make a clicking noise as it makes it more fun, but that's just me.

Ok here we go... Two presses of the button for migraine preventative...
I am making these notes as I go so sorry for their brevity. 

• Immediate migraine over right eye.
• Eyebrows feel like they are standing on edge.
• Then feel like they are trying to fly off.
• Migraine then over both eyes.
• The fuzziness creeps up my forehead.
• Goes into my head.
• Right back to my crown feels fuzzy and numb to the touch.
• Ouch.
• Ouch.
• Ouch.
• It feels like a hammer above my eyes.
• If I raise my eyebrows up the fuzz stops but the pain increases.
• Ouch.
• No pain no gain.
• Ouch.
• Pins and needles in forehead.
• I think it's reached it maximum now. It does that after 12 minutes.
• Did I say ouch???
• My eyes are vibrating.
• It feels like my forehead is climbing down over my eyes.
• My eyes are bloodshot now.
• If I close my eyes my forehead stings.
• My teeth are aching but I think that's because I am tensing them.
• Do you know I said it had reached its maximum, I think I was wrong.
• My forehead feels like it is made of sand.
• My skull is completely numb to the touch.
• Ouch.
• Ouch.
• This feels like a bad migraine over both eyes.
• At least I know this pain won't last more than 20 minutes.
• I hope the timer works as I've forgotten what time it started.
• It's like a mig without the side effects.
• I was hoping to be able to do things whilst using this but I'm not so sure now.
• I can't see now as everything is wobbling.
• Either I'm getting used to it or the intensity is decreasing.
• And it's over
• Wow release
• My forehead is aching slightly and head is numb a little.
• Slight ache in forehead and it is red in the shape of the electrode sticker.

Wow I feel a bit drained after that.  You can stop the intensity increasing at any time by pressing the button again, but I was determined to leave it and cope. No pain no gain.

 

I tried it again this morning and just as my forehead started to go numb after nearly 5 minutes (I remembered to time it this morning), the batteries ran out.  Slightly disappointing as they are meant to last a month, but I was actually relieved to avoid the pain again...  Still, it won't stop me, I just might press the button before the full 12 minute build up next time!

Massage Giants and Migraines

There is a knock at the door and a 17 1/2 stone giant turns up with a Yorkshire accent declares; "I'm here to give you a massage".  In he trundled with a 21 year old folding bed (much stronger than the cheap ones they make nowadays he tells me) and a bag full of oils and gadgets (only a few of which he ever uses).

So why not.  I've tried so many other possible treatments to alleviate my migraine, why not massage.  This is why I booked him for a home visit.  If nothing else, at least I would feel relaxed afterwards.  So I undress my top half and get on this antiquated bed with a little trepidation but it did feel quite sturdy.  Then he prepared the hole.  You know the one.  It allows your head to point straight down so you don't have to bend your neck through a 45 degree angle and force your body to twist behind it.  Well my massage giant put a clean, but well used towel over the hole.  That's over it.  Not around it.  And told me to lie down.  So breathing wasn't quite as easy as perhaps it should be but I'll be ok.

As he grabs my right arm and pulls it sharply upwards (I am lying down by this point so imagine a half way arm lock) he starts to regale me with stories of his working life.  As a prison guard.  I can only imagine that he uses a similar technique on the inmates.  It wasn't the most pleasant massage position I have ever received.  Then he shoves his fingers underneath my now raised shoulder blade and thrusts them back and forth.

Um... permission to scream in pain???  Oh, ok permission denied.

But then the strangest thing happened.  Whatever muscle he has been pummelling must have decided that under the circumstances, after taking each view into consideration and looking at all of the options from each perspective, considering that there was a 17 1/2 stone giant attacking it, the best thing to do was probably to do what it was being asked to do and relax.  The pain under my shoulder blade disappeared.

Gently placing my arm by my side he decided to turn his attention to my neck.  This involved standing at the top of the bed, holding my head in both hands, and pulling.  Really pulling.  I mean really, really pulling.  You can stop now as my head might come off pulling.

By this point I was starting to get a little scared and decided to try and steer things to a conclusion.  As it happened, this was pretty much all he had to offer.  There was a bit more light pummelling on my back, but it felt like a bit of an afterthought and that was that.

As I was about to get up he grabbed me with both hands and lifted me, horizontally, off the bed, twisted me forwards to a dead vertical stop with my feet on the ground glad to be under my own control again.  He didn't want to put any undue strain on the legs of his bed.

The next day I got a migraine!  Yes I know that you are meant to give these things a while to start working... But would you have done???

Pain v's Pain

Here is an interesting question to put to you.  Which is your best type of pain?  And yes, I know that the first answer will be "the type we don't get", but I'm sorry as that just isn't an option.  Way back when, I wrote about how being ill stops my migraines from appearing (http://anothermigraine.blogspot.co.uk/2011/06/migraines-vs-being-ill.html).  It hasn't happened for a while, but last week, whilst on holiday, I got a familiar twinge in my right foot.  My other arch nemesis arthritis was threatening to make an unwelcome reappearance.  I haven't had a bad attack for a good two years so didn't think to take my meds with me.

Lesson learned.

The hard way.

Have you ever tried pushing a pram containing an exhausted nearly 3 year old up a steep hill at the Zoo after having walked all day on a foot which sends pain searing up your leg every time you put it down?  But did you hear me complain dear reader?  Complain?  Me?  Ok I did a bit but it reeeaaally hurt.

But it wasn't all bad.  No, not at all.  The good news was that my migraines disappeared.  Four blissful days with no migraine and with no background pain.  I haven't had such a luxury for over 6 months.  Reading back at my previous post I said that I preferred the migraine pain to any other pain.  Is it too late to take that back?  Oh go on, please let me.  So to answer my original question... give me excruciating foot pain any day of the week over migraines!

Why?  Well, foot pain is just foot pain.  It hurts and you limp a bit.  Whereas with migraines, you get the pain and the sick feeling, and maybe get a bit grumpy due to the chemical imbalance in your head, can't concentrate, light hurts, I'm sure that I don't need to go on as you will have experienced these and many more in the past.

Sadly the foot meds have kicked in (ehem) and my foot is slightly better.  I say "sadly" because this means that the migs are back again.  So now I have two areas of pain to occupy my poor befuddled mind.  Sometime you feel that you just can't win whatever you do.

Still, my next Botox appointment is just one week away and I am rather looking forward to it... If you can look forward to being pierced 35 times with a needle.  Um, someone remind me why I am doing this again?   Oh yes, it will cure my migs.  Ok now say it like you believe it.... it WILL get rid of my migraines.

Migraines at a young age

I am pretty sure that I have suffered from migraines since I was a kid.  They were only self-diagnosed as such 5 years ago, but I know that I suffered with them for a long time before that.  The memory does fade slightly as to when they started.  I remember going to the doctor with my mum as a kid as I had jaw ache a lot.  Mum thought that maybe I had too many teeth all vying for space or that there was a problem with the alignment of my jaw.  The doctor we saw was a doctor from the old school.  A very old school.  He was like an old, kind, but misguided wizard.  After sitting behind his large wooded desk and listening to our story, he turned to face a plethora of ancient books, some without names, which covered the entire wall behind him (at least that's how I remember it as a kid).  From one shelf behind him he dragged out a particularly large book, blowing the dust from the top before opening the cover.  He moistened his index finger and thumb by licking them with his parched tongue, which looked as old as the books.  Peering over the top of his glasses he slowly turned the large pages.  By contrast, my current doctor googles for answers, although I am not commenting on which is the better method.

His conclusion was that I grind my jaw at night and would need a mouth guard to stop this from happening.  I knew that I wasn't grinding my jaw but was so in awe of this caricature of himself, that my mouth refused to budge from being tight shut.  Thankfully, whilst driving home, my mother listened and we never did get the mouth guard for me to wear at night to stop this mythical grinding from taking place.

Fast forward a decade or two. I can't remember getting much pain after that until I was in my 20's.  By then I just thought that I was getting headaches.  Must be too much work, or too little sleep.  The childhood jaw ache was long forgotten about.  Over the counter drugs never even dented the pain.  I wasn't the sort to go to the doctors, but in hindsight, that is exactly what I should have done.  It got to the stage where I had more days in pain than not.  I learned to deal with it and get on with my life.  I worked my way though many kooky methods to just to try and get a clear day without the pain.  Run to the top of the stairs and grab hold of the banister. Swing up and down and round and round to stretch my shoulder joints and pull out the pain.  Bang my head against the wall to knock the broken bit back into place.  I used to have an old computer where you had to hit the side of it to make it turn on.  I guess that I was applying that same logic to my head.  Needless to say, these methods never worked.

The worry was that it might be more than a simple headache.  I would analyze myself for other symptoms.  My vision was always clear, although it did hurt to re-focus from near to far.  My hearing was always clear and noise never made the pain worse or better.  No tingling in my fingers or toes.  Heart beat strong and unwavering.  Fitness level as good as it ever had been.  I was stuck in limbo, waiting for the pain to go, or something else to go wrong.  Always scared to visit the doctorsas they might tell me something that I don't want to hear.

Thus began a long and ongoing treck to find the perfect cure.  What I did do was visit alternative health experts.  I use the term expert sparingly and will explain why in my next blog...